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Services for those with learning disabilities

The Royal Borough of Kensington and Chelsea and Westminster City Council are looking at all services for people with learning disabilities and their families as part of the Big Plan 2018- 2021. This includes reviewing: day opportunities, respite services and services for those with challenging behaviour.

Customers views are a very important part of this review. We would be grateful if could spare a few minutes to complete this questionnaire. All responses are anonymous and will be handled in the strictest confidence. The closing date for returns is 16 November 2018.

How is the consultation taking place?
In addition to this questionnaire, the Council will be consulting: via Service User and Carer meetings,   supported conversations with service users and where necessary people who know them well and via provider forums and discussions with members of the joint learning disability teams.

If you have any questions or want further information, please email [email protected].

Services for those with learning disabilities

  Please indicate in what capacity you are completing this questionnaire. (Please tick all that apply)
 
  Which of the following learning disabilities support services do you  use? (Please tick all that apply)

Day opportunities

Why is this review taking place?

We are reviewing day activities to understand what must be improved to ensure that people with learning disabilities feel part of the wider society. Many people would like greater choices when using Personal Budgets allocated to them by the Council. This is so they can work towards and get jobs, pursue hobbies and interests on their own or with friends, or access training, education and local activities such as sports and clubs. We also need to ensure that our Day Centres provide positive and enabling environments, offering a range of activities to increase independence appropriate to individual needs.  
The Council will co-produce new day opportunities for people with  Learning Disabilities by working with a variety of key stakeholders, including:

- Mainstream Services, e.g. Libraries, Leisure Centres
- People who use services and their Carers and representatives
- Support providers and Voluntary Sector providers
- Day Centre and Operational staff
- Health Professionals and services

Who will this affect?
Anyone who needs support in managing daytime activities, those currently using a Day Centre run by the Council or a Voluntary Organisation, those caring for someone who currently attends a day centre, support providers, day centre staff, and care management staff. Other stakeholders, including independent and voluntary sector providers, Councillors, health representatives, and any groups or individuals with an interest in day opportunities for people with learning disabilities.

Current day opportunities services

We would like you to rate the quality of the service you receive from the day opportunities/services you use the most. Please first indicate the name of the two services you use the most and then rate the quality of service you receive. If you only use one service, please leave the second question blank
 
  Please rate the quality of the above service
Very good   Good   Neither good nor poor   Poor   Very poor  
           
 
  Please rate the quality of the above service
Very good   Good   Neither good nor poor   Poor   Very poor  
           
  Please indicate how strongly you agree or disagree that the current day opportunities help people to become more independent.
Strongly agree   Agree   Neither agree nor disagree   Disagree   Strongly disagree  
           

Future day opportunities services

  What day opportunities services would you like to see in the future? (Please tick all that apply)
 
 

Day Centres

If you support someone who uses or has used a Day Centre, provided by the Council or through a Voluntary Sector Organisation or both, we would like your views on support offered/provided. If you do not currently use these services but would like to have a say, your views are most welcome too.
  Please indicate your current use of day centres.
  Please indicate which day services you are currently using or have used in the past.
  Currently using   Have used in the past   Have not used  
  Westminster -  Lisson Grove      

  Westminster -  Droop Street      

  Westminster - Caxton Youth Project      

  Personal Independence Project (PIP) Day Services      

  RBKC -  Learning Disability Resource Centre, St Marks Road      

  RBKC -  Equal People Mencap Day Resource Centre      

  RBKC - Full Of Life Day Resource Centre      

  RBKC - NAS Day Centre Resource      

  Other, please specify below      
 
  Please indicate how strongly you agree or disagree with the following statements about day centre services
  Strongly agree   Agree   Neither agree nor disagree   Disagree   Strongly disagree  
  Day Centre support enables a good range of options to access community activities          

  Day Centre support enables progression towards independence, appropriate to individual needs          

  Day Centre support helps families to maintain their caring role by providing a regular break          

  Day Centre support provides travel training on a regular basis          
 

Services for those with challenging behaviour

Introduction
The aim of the review is to organise better support for people with learning disabilities in Westminster and Kensington and Chelsea who have challenging behaviour.  This support should help people to get and stay safe and healthy and live full lives.
Why is this review taking place?
The Council wants to work with people who use services and their families and providers and practitioners to make the right decisions about future services. Some people with learning disabilities in the two boroughs have challenging behaviour. This means family carers and/or service providers sometimes find it difficult to help them to get and stay safe and live full lives. This can also have an impact on the quality of life of family carers. We need a local plan to make sure the right support and services are available.
Who will this affect?
People with learning disabilities who have behaviour that challenges services.  Family carers and providers who support those people.  Practitioners and clinicians who work with people with challenging behaviour.
Themes and Issues.
There are some initial themes and issues that we have identified at the beginning of this process:
We need to ensure that the following types of support are in place in the two Boroughs:

- Assessment, treatment and support for individuals who display behaviour that challenges
- Provision of support, and person specific training for families and agencies who are supporting individuals
- Coordination of transitions from inpatient and other settings
- Co-ordinated crisis response

We know that some people have to leave their borough to get the support they need. If we had better housing options locally we could help some people to have support nearer home. We need more support and care providers who can provide good support to people with challenging behaviour.
We need to make sure all services (not just specialist challenging behaviour services) play their part in helping people to get and stay safe and live full lives.

Current services for those with challenging behaviour

  How important to you are services for people with challenging behaviour?
 
 
 
  What do you think about services for people with challenging behaviour that are provided now in Westminster and Kensington and Chelsea (including support for families and service providers)?
Very good   Good   Neither good nor poor   Poor   Very poor  
           

Future services for those with challenging behaviour

  What services for people with challenging behaviour would you like to see in the future (including support for families and service providers)? (Please tick all that apply)
 
 

Short Breaks Respite Support

Introduction
This Review is taking place across Westminster and Kensington and Chelsea. Current services are delivered from two registered care homes, at Kingsbridge Road in North Kensington and Alison House in North Westminster, which provide overnight stays. There is also an element of ‘outreach support’ provided from Kingsbridge Road where people are supported to have time joining in community activities which provides a short (but not overnight) break to their family carer.
Why is this review taking place?
The contract for the current Short Breaks Services runs out in summer 2019. We want to find out what people think about the current service and about what support and services people want in the future.  
This information will help commissioners to prepare options for future Short Breaks Services.
Themes and Issues.
There are some initial themes and issues that we have identified at the beginning of this process:

- The accommodation we use for short breaks needs improving.
- Currently every family eligible for short breaks gets the same allocation of service.  This does not respond to different levels of need.
- We do not have a good way for people who use short breaks to look at alternatives, using direct payments.
- Lots of other services like day opportunities and colleges provide breaks for carers.
- Some people with challenging behaviour need short breaks.  It does not always work well for all people to use the same Short Breaks Service.  
Who will this affect?
Family members who need short breaks to help them maintain their caring roles. People with learning disabilities who use short breaks. Providers of Short Breaks Services.

Current Short Breaks Service

  Which Short Breaks Services have you/do you use? (Please tick all that apply)
 
  How important is the Short Breaks Service to you?
 
 
 
  Please indicate how strongly you agree or disagree with the following statements about the Short Breaks Service in Westminster and Kensington and Chelsea.
  Strongly agree   Agree   Neither agree nor disagree   Disagree   Strongly disagree  
  The buildings used are a good standard          

  The staff provide good support and care to my family member          

  There are a good range of options for short breaks in Westminster and Kensington and Chelsea          

  If I want to arrange my own short breaks with a direct payment, it is easy to do so          

  The short breaks I get help me to maintain my caring role          
 

Future of the Short Break Service

  What Short Breaks Services would you like to see in the future? (Please tick all that apply)
 
 

About the service user

Please answer the following questions about the person using the services (either yourself, the person you care for or your family member). This information will be handled in the strictest confidence.
  Is the service user...
 
  What sex is the service user?
 
 
 
  Which age group do they belong to?
 
 
 
 
   
  How do you describe their race or ethnic origin?
 
 
 
   
 
  Do they have any long-term illness, health problems or disability which limits their daily activities?
 
  If yes, please tick all that apply
 
 
 

Using your personal information
The information you have provided to the Royal Borough of Kensington and Chelsea and Westminster City Council will only be used to understand respondents views on services for those with learning disabilities. Where you have provided your contact details, this may be used to contact you about learning disability services. Your information will only be used for the intended purpose, we will not collect any additional information about yourself, we will not share your data with other Council Departments and or external bodies. If we intend to use your information for any other purpose, we will normally ask you first. In some cases, the Council may use your information for another purpose if it has a legal duty to do so, to provide a complete service to you, or if there is a risk of serious harm or threat to life. The Council will retain your information in accordance with our retention schedule and it will be held securely.

If you have any questions regarding your Data Protection rights, such as accessing your personal information, etc. or if you have a concern over the handling of your information. You can email [email protected]

Thank you for completing this survey,
please click 'Submit' to send us your response.

 
   
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